I haven't blogged since the spring, but I've got a few things to mull over today. The picture on the left is how I look on the outside, the picture on the right represents how I often feel on the inside. This was "old age" make-up for a class I was in. I am becoming so frustrated with my muscles that I will try anything to help them work. A few weeks ago someone commented on my vlog asking when they could expect their muscles to start feeling better after adrenal surgery. I honestly thought NEVER to myself. One of the biggest points of contention I still have with Cushing's is muscle weakness and soreness. It had only been 2 months since that person's surgery. It's been... wow. It's been 2 years and 6 months since I had my adrenal gland out! Of course, the more I think about it, the more I have to take into account that I was malnourished due to severe nausea for another year. Thanks, gallbladder. I drank protein shakes, but it doesn't completely substitute for real food. My thyroid flipped out during that time period, too. It has only just recently gotten to the level we want it at. So you could say I had setbacks. Even so, I never feel like I'm making a lot of headway. My lower back hurts if I have to sit up for long periods of time and stand for that matter. It's not something a massage will fix. I went to the chiropractor a few times when I was home with my parents. I'm just weak though. I made myself bike a lot last week, but then I had to take multiple days off. I realize I need to moderate, yet then I feel like I barely do anything. And it's not like I don't push through the pain. The muscles start to give out. Swimming will probably be more soothing. During the school year, I end up getting tired just from walking around campus. I had all these hours in the costume shop I narrowly finished. I still have scenery and lights to do that for. Anyway, it drives me nuts that my endocrinologist has no advice for me. Physical therapy? Whose going to pay for that and how am I going to get there? Other cushies told me I should check my Insulin-like growth factor. I guess that's a kind of protein/hormone in the body that promotes muscle growth. It's stimulated by growth hormones. I have no clue what's going on with me there, but my doctor is getting an earful at my physical. For the time being, I'll try taking a glutamine supplement which helps build proteins, as well. This is what was suggested to me by my fellow zebras. I already have vitamins and I've realized that if I want to regain muscles but also keep my weight down, I need to better manage my lifestyle. I'm eating, although not on a very good schedule. I'm sure I'm not eating enough protein. Diet may play more of a role than any exercise regiment can. The other thing I'm irritated with is my new birth control. I got prescribed Seasonique instead of Seasonale which turns out to be very different based on the symptoms I was having. The joy of womanhood has been visiting me constantly. Just about every muscle in me is stressed! This ongoing battle really depresses me at times because I want to be more active. I end up straying away from conversations because I need to sit down or I just go home. I may not say anything about it. I squirm in my chair or lean against things. I don't think others understand as I can walk. I don't grimace with every step and I'm not going to push it so far just to prove I'm in pain.
Tuesday, June 25, 2013
How long does the muscle atrophy last? FOREVER
I haven't blogged since the spring, but I've got a few things to mull over today. The picture on the left is how I look on the outside, the picture on the right represents how I often feel on the inside. This was "old age" make-up for a class I was in. I am becoming so frustrated with my muscles that I will try anything to help them work. A few weeks ago someone commented on my vlog asking when they could expect their muscles to start feeling better after adrenal surgery. I honestly thought NEVER to myself. One of the biggest points of contention I still have with Cushing's is muscle weakness and soreness. It had only been 2 months since that person's surgery. It's been... wow. It's been 2 years and 6 months since I had my adrenal gland out! Of course, the more I think about it, the more I have to take into account that I was malnourished due to severe nausea for another year. Thanks, gallbladder. I drank protein shakes, but it doesn't completely substitute for real food. My thyroid flipped out during that time period, too. It has only just recently gotten to the level we want it at. So you could say I had setbacks. Even so, I never feel like I'm making a lot of headway. My lower back hurts if I have to sit up for long periods of time and stand for that matter. It's not something a massage will fix. I went to the chiropractor a few times when I was home with my parents. I'm just weak though. I made myself bike a lot last week, but then I had to take multiple days off. I realize I need to moderate, yet then I feel like I barely do anything. And it's not like I don't push through the pain. The muscles start to give out. Swimming will probably be more soothing. During the school year, I end up getting tired just from walking around campus. I had all these hours in the costume shop I narrowly finished. I still have scenery and lights to do that for. Anyway, it drives me nuts that my endocrinologist has no advice for me. Physical therapy? Whose going to pay for that and how am I going to get there? Other cushies told me I should check my Insulin-like growth factor. I guess that's a kind of protein/hormone in the body that promotes muscle growth. It's stimulated by growth hormones. I have no clue what's going on with me there, but my doctor is getting an earful at my physical. For the time being, I'll try taking a glutamine supplement which helps build proteins, as well. This is what was suggested to me by my fellow zebras. I already have vitamins and I've realized that if I want to regain muscles but also keep my weight down, I need to better manage my lifestyle. I'm eating, although not on a very good schedule. I'm sure I'm not eating enough protein. Diet may play more of a role than any exercise regiment can. The other thing I'm irritated with is my new birth control. I got prescribed Seasonique instead of Seasonale which turns out to be very different based on the symptoms I was having. The joy of womanhood has been visiting me constantly. Just about every muscle in me is stressed! This ongoing battle really depresses me at times because I want to be more active. I end up straying away from conversations because I need to sit down or I just go home. I may not say anything about it. I squirm in my chair or lean against things. I don't think others understand as I can walk. I don't grimace with every step and I'm not going to push it so far just to prove I'm in pain.
Subscribe to:
Post Comments (Atom)
First off I want to say terrific blog! I had a quick question in which I'd like
ReplyDeleteto ask if you do not mind. I was curious to find out how you center yourself and clear your thoughts prior to writing.
I've had a difficult time clearing my thoughts in getting my
thoughts out there. I truly do enjoy writing but
it just seems like the first 10 to 15 minutes are
generally lost simply just trying to figure out how to begin.
Any recommendations or tips? Cheers!
My blog :: inteligator
I'm not sure how to answer this question. I generally have an idea to start with, but it takes me a long time to write the post and end up with a title at the end. I guess I'd suggest just writing whatever you're feeling and then going to back to reorganize your thoughts! Thanks for reading
DeleteWell, in more recent news, I am trying physical therapy. I was told I have core weakness, a weak SI joint, and diffuse weakness. It's possible that part of my problem is that my muscles were not able to re-grow properly because I'm constantly overcompensating. I don't have great hopes that it will entirely fix my problems. I think there's is an issue with pain tolerance after Cushing's because I know many others who complain of the same thing (prolonged Cortisol exposure does a number). Unfortunately, I may have to look into pain management as a last resort to get some stability in my life. I don't think there's anything wrong with my growth hormones or anything at present. Just that high cortisol royally messes people up.
ReplyDeleteGlad you like it! :)
ReplyDeleteFirst of all I would like to say superb blog!
ReplyDeleteI had a quick question which I'd like to ask if yyou don't mind.
I was curious to find out how you center yourself and clear your thoughts prior to writing.
I have had a diffficult time clearing my mind in getting my thoughts
out there. I do take pleasure in writing however it just seems like the first 10 to 15 minutes are lost simply just trying to figure out how to begin. Any suggestions or tips?
Thanks!
my webpage; Buy Psn Card
Hi. Someone above asked me a similar question before. It can be hard to get a post going especially if you're not exactly in the mood. But here's my advice: I usually have an idea to start with, but it takes me a long time to write the post and I end up with a title at the END. I'd suggest just writing whatever you're feeling and then going to back to reorganize your thoughts! Thanks for reading
DeleteI'm so glad it helped!
ReplyDeleteI quite like reading a post that can make men and women think.
ReplyDeleteAlso, thank you for permitting me to comment!
Also visit my page - nitrofocusblog.com (lyosvn.in2p3.fr)
Superb post however , I was wondering if you could write a litte
ReplyDeletemore on this topic? I'd be very thankful if you could elaborate a little bit further.
Thanks!
Review my web blog Gain muscle
I could post a little more about my current situation. I found a weak core is reason for widespread muscle problems and was diagnosed with fibromyalgia,as well (which just explains my personal pain). I'll try to write something. I don't post often in here lately since I graduated college
DeleteIt's mostly WYSIWYG so you should be fine
ReplyDelete