It wasn't adrenal insufficiency this time that brought paramedics to my door. My legs finally gave out and I hit my head equaling unconscious Vanessa. The worst part about this experience is that the EMTs did not believe a word I said. They thought I was drunk because I had a couple empty beer bottles in my room. And they had no idea what Cushing's was! Maybe if I had said I was having an adrenal crisis they would've understood? I got so fed up I told them to call my mom so she could reiterate it all. They asked me why I had so many pills. Once again, because I have a REAL medical condition. I said, "read the labels. They're prescribed to me. Or they're vitamins". I'm not a pill popper. I kept telling them they could check my vital signs and blood alcohol content. Everything was perfectly normal when they finally did. I don't think they took anything to heart until they talked to my mom. There I was in pain, not being able to stand and I had to defend myself like a criminal. I couldn't just say I have a condition and get some understanding. They had never heard of Cushing's. It hurts to walk anywhere today, although I guess I have my proof that my muscles are worse than they would seem. I also kept telling them if I didn't have a concussion, I was fine and needed to get to bed. Cause I still went to class this morning! I'm lucky I don't have one, but if I had thank god my roommates found me right away. I could've died... how many times do I have to get this bad before someone listens! I mean, it's really scary when the medics don't even get it. I read a horrible article once about someone who had died from adrenal crisis because paramedics didn't know the kid needed Cortisol. I'm glad I wasn't having a crisis, because maybe the same would've happened to me. How many times do I have to worry my family and friends? My poor mother. At least she talked some sense into the "doctors". She also agrees that I need to go to a different specialist because my digestion is not any better. I keep trying not to think about how close I came to being seriously injured. One more thing: my sister with the prediabetes had an unusual spike in her white blood count and our family doctor has no idea why. It's about at the same levels mine used to constantly be at. She's sleeping a lot WITHOUT he medications. She has more stretch marks. What on earth is happening to her? Does she have Cyclic Cushing's? Is that why we haven't seen high Cortisol results again? It was pretty damn high once. I hear Cushies talk about the "golden standard" test not being so golden. Because the golden standard of the 24-hour urine test has flopped two times already with her. Anyway, I was scared and not being taken seriously. I told the damn cop to look it up when he got home. I am beside myself here.
No comments:
Post a Comment